| | | | | | | | The accounts remain healthy with sufficient reserves to meet all requirements expected by the Foundation in 2002 | | | | | | | | | | | | | | | | | | Once again the London Marathon was the largest fund-raiser for the Foundation with more than £5,000 being raised by runners | | | | | | | | | | | | | | | | | | The Foundation continues to grow in stature and size | | | | | | | | | | | | | | | | | | The Foundation organised its first event outside the UK by running a family day at Dublin | | | | | | | | | | | | | | | | | | The Foundations newsletter, Reaching Out, won an Award of Excellence in the competition for Britains best charity newsletter | | | | | | | | | | | | | | | | | | Work progressed successfully on the research project by Birmingham University into Self injurious behaviour among people with CdLS | | | | | | | | | | | | | | | | | | Relationships with the USA and other countries remain good | | | | | | | | | | | | | | | | | | At the end of 2001 there were 349 families with a CdLS member in the Foundation an increase of seven per cent between 2000 and 2001 | | | | | | | | | | The CdLS Foundation, UK, and Ireland continued to support its mission as an international organisation dedicated to ensuring early and accurate diagnosis of CdLS, promoting research into aspects of the syndrome and to assist in enabling families, friends and professionals to make informed decisions and plan for the affected persons present and future. |