Share your experiences
 
Polish CdLS families want to share experiences with families in the UK and Ireland.

So, why not put fingers to keyboard and write to a family via the Polish Association’s e-mail at cdls@poczta.fm

Alternatively, check out the Association’s website at www.cdlspolska.xu.pl where you will find families’ direct e-mail addresses together with photos and background information.

Language should not be a barrier as there is a translator available.

So far, the Polish Association has found 48 CdLS children in Poland and believes it will find more after a programme about the syndrome is broadcast this month on national television.

 
 
 
January 2003
 
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Newspaper report raises awareness in Scotland
 
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Care card is ‘best practice’
 
Foundation’s root march
 
Foundation backs research work
 
On your wavelength?
 
Factsheet explores genetic conditions
 
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