Wonderful in Copenhagen
The 6th International CdLS conference took place in July in the city of Copenhagen. A handful of British delegates attended the event in the Danish capital - including CdLS trustee David Axtell. Here is his report...
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What a corker
Families from all over Ireland - and some the UK - travelled to the southern tip of the Republic, kissed the Blarney Stone and talked about the challenges of the COrnelai de Lang Syndrome. Ella Nethersole talked to a number of families and listened to the professionals who offered new ideas....
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Conference opens up a new world for Moloneys
Pretty auburn-haired Róisín Moloney from Kilkenny was a hit at the conference. The two-year old was at the conference with her mum Monica, dad John, and two brothers.
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Travelling from Devon to Cork is nothing for AJ
Pretty auburn-haired Róisín Moloney from Kilkenny was a hit at the conference. The two-year old was at the conference with her mum Monica, dad John, and two brothers.
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Wonderful in Copenhagen
 
Conference opens up a new world for Moloneys
 
Travelling from Devon to Cork in nothing for AJ
 
Learning how to COPE with the pressures of CdLS
 
Toothless twins still have winning smile
 
Conference delivers priceless advice
 
Deirbhile is tested at Cork
 
Foundation gives genes grant to Newcastle
 
There's nothing wrong with being a pushy parent
 
Studies to focus on Social issues
 
 
 
 
 
 
 
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