News     Families take the high road to Edinburgh in October The CdLS Family meeting roadshow moves to Edinburgh for the weekend of October 27-28. Read more »     Feature   ASP the family Families from all over the UK and Ireland came to the Holiday Inn at Telford to meet professionals and other families and to hear the latest findings about the syndrome.. Read more »     Fundraising    how Cdls events turned into a media nightmare for Rachel and Nick Rachel and Nick Davies of Malvern decided to do some fund raising for CdLS with an event at their local cricket club and with a friend who would run a marathon. Read more »     People   Life without Lizzie, one year on... Losing a CdLS child is a tragedy that we all fear. Peta Hamer experienced that tragedy a year ago and on the anniversary of her daughter Lizzie's death Peta shares her feelings on the grief and the empty void that is now at the heart of her family. Read more »     Issues   The day job Teenagers and young adults with CdLS have a special treat in store as part of the social research the Foundation is carrying out alongside Birmingham. Read more »

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