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Helping parents, carers and professionals to reduce challenging behaviour and improve the wellbeing of people with Cornelia de Lange Syndrome... read more
We are very happy to announce that the book of family stories from our CdLS parents and carers, has been published and is available to buy on Amazon... read more
The Foundation has put together some useful information, tips to be prepared for any eventuality and ideas for things to do while in isolation... read more
We have sought advice from our professionals on any extra considerations for our individuals with CdLS... read more
We've had many enquiries following media coverage about contamination of Ranitidine, which many of our CdLS people are taking... read more