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Glasgow Conference & AGM set for May 11th/12th
 

Glasgow has been confirmed as the location for the next CdLS UK & Ireland family conference weekend. The venue is the The Glynhill Hotel and Leisure Club, Paisley Road, Renfrew, Glasgow, PA4 8XB. The main conference day will be saturday 12th May but there will be informal activities on the evening of friday 11th as well.

The hotel is situated 10 minutes from Glasgow city centre, 10 minutes drive from the airport and is close to the M8. Rooms have been negotiated at a special rate of £75 per night for twin/double, family rooms £10 extra per child - but no charge for a child with CdLS. These rates include use of the leisure club. The hotel includes a range of restaurants and bars. See http://www.glynhill.com for more details.

Guest speakers will include Dr David Fitzpatrick, Professor Chris Oliver, Dr Peter Gillet and Sara Peaford. The conference programme will run as follows.

Friday 11th May
8.00 pm Informal gathering to meet and chat with other delegates and trustees over drinks and snacks

Saturday 12th May
10.30 am Introduction and welcome from Chairman Jim May.
10.45 am Dr Morad Ansari - Genetics of CdLS
11.45 am Dr David Fitzpatrick - Overview of diagnosis and complications
12.30 pm Lunch and AGM
14.00 pm Dr Peter Gillet - Common GI problems in CdLS
14.45 pm Sara Peaford - Communication issues in CdLS
15.45 pm Prof. Chris Oliver - Overview of behaviour in CdLS
16.30 pm Facilitated open forum - your chance to air your issues as a parent or carer, talk about the stresses on family life, or anything else on your mind!
17.30 pm Conference ends

Each speaker session will include 15 minutes for Q&As at the end. There will be tea/coffee breaks in morning and afternoon sessions.

Doctor Consults will be running throughout the day

In the evening there will be a Quiz Night

Registration desk will open from 9.30 am on the saturday. There will be a creche and/or chill-out room throughout the day. Lunch is provided free of charge for delegates while the AGM takes place. Please contact Jacquie in the CdLS office for information or to book for the conference and Doctor Consults. Please also book rooms with Jacquie rather than the hotel. Families attending just for the saturday (ie NOT staying at the hotel) still need to book into the conference with Jacquie.

 

 

 
 

 

 

 

 
  Reaching Out
   
 
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  AGM Saturday 12th May 12.30 pm  
     
  The AGM of the Foundation will be held at the Glynhill Hotel over a working lunch. There are some vacancies on the board of trustees so the Foundation is looking for new members interested in stepping up to become a trustee. Chairman Jim May said, "We would be really interested in hearing from a sibling of a CdLS person who is over 18 and would like to be involved. We are looking for trustees from all over the country and all walks of life."  
     
  Caledonian Caper  
 

Between the 17th and 24th of May Edwin Rich will be walking the 76 miles of the Great Glen Way between Fort William and Inverness to raise funds for Cornelia De Lange Syndrome Foundation UK.

Please help him raise £2000.00 for CdLS by making a donation by visiting his Just Giving page www.justgiving.com/Edwin-Rich.

 
     
     
Database details
 
Our database crashed last year and it appears that we have lost some recently revised information. If anyone hasn’t received a Reaching Out Magazine recently or knows someone who hasn't the chances are we have lost the contact details. Please contact Jacquie at the Office on 01375 376439 so we can put the matter right.
 
 
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