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Click here for standing order form
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| Belfast conference |
| The Belfast conference will be held at the Holiday Inn, Belfast on Saturday May 3rd. A team of leading doctors will be attending. For details contact the hotel at:
The Holiday Inn
22 Ormeau Avenue
Belfast BT2 8HS
Unlike previous conferences, families have to book their own rooms with the hotel BUT MUST STILL REGISTER FOR THE CONFERENCE WITH JACQUIE AT THE OFFICE when any doctor appointments will be made. Hotel rooms cost £89 per night B&B for single occupancy or £99 B&B per night for family/double. Children under 12 stay free as does anyone under 19 sharing. Tel 02890 271707 quoting code CDL. |
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Current
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New online resource for CdLS from Cerebra |
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Chris Oliver and his team at the Cerebra Centre for Neurodevelopmental Disorders have received funding for a new and exciting project which will enable us to develop online and cloud resources for families, carers and professionals caring for or working with individuals with genetic syndromes. The project is funded by the ESRC in partnership with Cerebra and will initially feature information about six genetic syndromes (Angelman, Cornelia de Lange, Cri du Chat, Fragile X, Prader-Willi and Smith Magenis syndromes) with the potential to expand this to other groups in the not too distant future. For more information and to see how you can get involved in this project please see the information PDF here. |
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EMAIL UPDATES |
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We are looking for members of the CdLS Foundation to supply a relevant email addresses as this appears to be the most affective method of communication for the future, as long as we have a sufficient number of addresses to use. Please email Jacquie in the office at info@cdls.org.uk. |
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| Give and buy |
Just a gentle reminder for all those who use sites such as Amazon to buy from. If you access such sites through the 'JustGiving' site some monies are automatically donated to CdLS each time you purchase an item - and it costs you nothing! |
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