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The next UK conference will take place on Saturday 2nd November at Holiday Inn Gloucester-Cheltenham where families will have a chance to have consultations with doctors and experts and also listen to talks by these Professionals. There is no charge for conference but rooms are £50 per night B&B.

The programme (subject to late changes) will run as follows:

Saturday 2nd November

9.30 am - Jim May (Chairman of the CdLS Foundation UK and Ireland) - "Welcome and Introduction to the conference"
9.45 - Tracy Elliot (Cerebra) - "Cerebra: Our Research and Parent Support Services"
10.30 - Coffee

10.45 - Peter Hammond (Molecular Medicine Unit UCL Institute of Child Health ) - "Linking face shape and genotype in CdLS"
11.45 - David Fitzpatrick (MRC Human Genetics Unit, University of Edinburgh, Western General Hospital) - "An overview of the diagnostic features and medical complications in CdLS"
12.30- Lunch

13.45 - Chris Oliver (Cerebra Centre for Neurodevelopmental Disorders, University of Birmingham) - "An overview of behaviour in CdLS"
14.30 - Sara Peaford, Kate Fitzherbert & Mary Shehan (Speech and Language Therapists, Treetops & Beacon Hill Schools) - "A look at the communication issues affecting people with CdLS"
15.15 - Break

15.30 - James Robinson (Policy Officer at Mencap) - "Current changes to the welfare system and education"
16.15 - Peter Gillet (Royal Hospital for Sick Children, Edinburgh) - "Common GI problems in CdLS"

There will be Q&A sessions at the end of each presentation.

Please contact Jacquie at the office on 01375 376439 to make a booking or register for the Conference.

The hotel reserved for conference delegates is Dazzler Tower Recoleta, Avenida General Las Heras 2163, Capital Federal (C1127AAD), Buenos Aires. Telephone 00 54 11 5217 5799. The hotel's website is www.dazzlertowerrecoleta.com. Room rates are; single $120.00 (US), double $145.00(US).

To register for the conference, please contact Jacquie in the office. She will send you the registration form which you will need to complete and return to her. She will then forward to the Argentinian CdLS Group. Registrations must be in before 30th September 2013. The Foundation will pay registration fees for UK families wishing to attend. Please register through the CdLS UK office rather than the argentinian website as the office has registration forms in english and we need to keep track of fees to be paid.

Families wishing to attend must book the hotel directly on the contact details above. Please ensure you mention that you are booking as part of the CdLS Conference to get the preferential rate. We believe that breakfast and lunch may be included but this is to be confirmed. Evening arrangements are left open for people wishing to explore the city or attend organised conference entertainment.

More details will be posted here as soon as we get them.

Just a gentle reminder for all those who use sites such as Amazon to buy from. If you access such sites through the 'JustGiving' site some monies are automatically donated to CdLS each time you purchase an item - and it costs you nothing!