Reaching Out

Reaching Out

Read the latest issue online Read more »

Standing Order

Standing Order

Download a PDF version of the Standing Order Form so you can make a regular donation Read more »

Information Centre

Information Centre

Facts and basic information about Cornelia de Lange Syndrome Read more »

Background

Background

Articles about CdLS, growth charts and pictures Read more »

Diagnostic and Treatment Protocols

Diagnostic and Treatment Protocols

Medical information relating to the syndrome Read more »

Medical Q&As

Medical Q&As

Email the Scientific Advisory Council Read more »

News

FIND Website is now Live!

The team at the Cerebra Centre for Neurodevelopmental Disorders have launched a new website for six syndromes including CdLS... read more  

  

Temporary phone number - 07746 922049

The Foundation has moved offices. The good news is that we should be able to keep the same phone number but for the time being, please use the temporary mobile number above... read more  

  

New Research - Social Development in CdLS

There are two new exciting research projects being led by Prof. Chris Oliver and Dr. Jo Moss at the Cerebra Centre for Neurodevelopmental Disorders... read more

 

Urgent Appeal - We need your stories and photos!

We are putting together a "Case for Support" for the Foundation. We need stories of children's lives, quotes from parents, family members, high-res images that will illustrate the lives of children with CdLS... read more

 
 

What's On

Newcastle was a winner. Next up, Liverpool!

Already the interest is in the next conference weekend and we can confirm that it will be in Liverpool on 21st March 2015... read more