Reaching Out

Reaching Out

Read the latest issue online Read more »

Standing Order

Standing Order

Download a PDF version of the Standing Order Form so you can make a regular donation Read more »

Information Centre

Information Centre

Facts and basic information about Cornelia de Lange Syndrome Read more »

Background

Background

Articles about CdLS, growth charts and pictures Read more »

Diagnostic and Treatment Protocols

Diagnostic and Treatment Protocols

Medical information relating to the syndrome Read more »

Medical Q&As

Medical Q&As

Email the Scientific Advisory Council Read more »

Facebook

Facebook

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News

Database Update

We have found that much of the contact information we hold is out of date. As a result, the only way we can keep the integrity of our data intact is to systematically try to contact all families.... read more

Study on CdLS People with a Change in Gene SMC1A

We would like to ask you to help us with a study on children and adults with Cornelia de Lange syndrome who have a change in the gene SMC1A... read more

Important Research from Cerebra

Through extensive research at Cerebra we have identified that a delay in getting a diagnosis of your child’s condition can be a problem... read more

New Research - Social Development in CdLS

There are two new exciting research projects being led by Prof. Chris Oliver and Dr. Jo Moss at the Cerebra Centre for Neurodevelopmental Disorders... read more

    

Research into hospital experiences with CdLS

Birmingham University are conducting a research project that some of you may be interested in... read more


What's On

 

Solihull weekend was a success. Springtime in Guildford!


The conference weekend in Solihull has been very well attended and given our families so much useful information. The next one will be 30th April 2016 at the Holiday Inn, Guildford, Surreyread more