Download a PDF version of the Standing Order Form so you can make a regular donation Read more »
Our database crashed last year and it appears that we have lost some recently revised information. If anyone hasn't received a Reaching Out Magazine recently or knows someone who hasn't the chances are we have lost the contact details. Please contact Jacquie at the Office on 01375 376439 so we can put the matter right.
Facts and basic information about Cornelia de Lange Syndrome Read more »
Articles about CdLS, growth charts and pictures Read more »
Medical information relating to the syndrome Read more »
Email the Scientific Advisory Council Read more »
The voicemail issue has been resolved but there is now some other news that impacts on our telephone service, because . . .
We would like to announce that the Foundation is moving offices. After many years at the Lodge Lane address in Grays, we will be relocating to the North Stifford area of Grays... read more
There are two new exciting research projects being led by Prof. Chris Oliver and Dr. Jo Moss at the Cerebra Centre for Neurodevelopmental Disorders... read more
We are putting together a "Case for Support" for the Foundation. We need stories of children's lives, quotes from parents, family members, high-res images that will illustrate the lives of children with CdLS... read more
Our autumn conference and family weekend will be held on the weekend of 24-26th October 2014. The venue will be the Holiday Inn, Gosforth Park, Newcastle Upon Tyne... read more