Reaching Out

Reaching Out

Read the latest issue online Read more »

Standing Order

Standing Order

Download a PDF version of the Standing Order Form so you can make a regular donation Read more »

Database details

Our database crashed last year and it appears that we have lost some recently revised information. If anyone hasn't received a Reaching Out Magazine recently or knows someone who hasn't the chances are we have lost the contact details. Please contact Jacquie at the Office on 01375 376439 so we can put the matter right.

Information Centre

Information Centre

Facts and basic information about Cornelia de Lange Syndrome Read more »

Background

Background

Articles about CdLS, growth charts and pictures Read more »

Diagnostic and Treatment Protocols

Diagnostic and Treatment Protocols

Medical information relating to the syndrome Read more »

Medical Q&As

Medical Q&As

Email the Scientific Advisory Council Read more »

News

We have moved but the phones are still out!

The Foundation has moved offices. The good news is that we should be able to keep the same phone number but unfortunately, this means the service provider is taking a long time to restore the service. Reaching Out has also been delayed... read more  

  

New Research - Social Development in CdLS

There are two new exciting research projects being led by Prof. Chris Oliver and Dr. Jo Moss at the Cerebra Centre for Neurodevelopmental Disorders... read more

 

Urgent Appeal - We need your stories and photos!

We are putting together a "Case for Support" for the Foundation. We need stories of children's lives, quotes from parents, family members, high-res images that will illustrate the lives of children with CdLS... read more

 
 

What's On

Newcastle Conference Programme Finalised!

We are pleased to announce the programme of speakers and other details for the Newcastle weekend... read more