Reaching Out

Reaching Out

Read the latest issue online Read more »

Standing Order

Standing Order

Download a PDF version of the Standing Order Form so you can make a regular donation Read more »

Database details

Our database crashed last year and it appears that we have lost some recently revised information. If anyone hasn't received a Reaching Out Magazine recently or knows someone who hasn't the chances are we have lost the contact details. Please contact Jacquie at the Office on 01375 376439 so we can put the matter right.

Information Centre

Information Centre

Facts and basic information about Cornelia de Lange Syndrome Read more »

Background

Background

Articles about CdLS, growth charts and pictures Read more »

Diagnostic and Treatment Protocols

Diagnostic and Treatment Protocols

Medical information relating to the syndrome Read more »

Medical Q&As

Medical Q&As

Email the Scientific Advisory Council Read more »

News

Welcome to the new CdLS UK & ireland website

We are pleased to welcome you to the new, improved website... read more

Steve Penney 1954 - 2014

It is with great sadness that we have to announce the death of Steve Penney. Steve was one of our Founding Trustees... read more

New online resource for CdLS from Cerebra

Chris Oliver and his team at the Cerebra Centre for Neurodevelopmental Disorders have received funding for a new and exciting project... read more

 

What's On

Belfast Conference 2014

The first conference this year will be held on the weekend of 3rd May in Belfast. We will also hold our AGM. The venue will be The Holiday Inn, 22 Ormeau Avenue, Belfast BT2 8HS... read more