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News
CdLS Specific Be-Well Checklist Now Available
Helping parents, carers and professionals to reduce challenging behaviour and improve the wellbeing of people with Cornelia de Lange Syndrome... read more
Family Stories Book is published
We are very happy to announce that the book of family stories from our CdLS parents and carers, has been published and is available to buy on Amazon... read more
Advice, Tips and Ideas for Coronavirus Situation
The Foundation has put together some useful information, tips to be prepared for any eventuality and ideas for things to do while in isolation... read more
COVID-19 and Implications for CdLS
We have sought advice from our professionals on any extra considerations for our individuals with CdLS... read more
Ranitidine Recall - Advice
We've had many enquiries following media coverage about contamination of Ranitidine, which many of our CdLS people are taking... read more
What's On & Research
Awareness Day Purple Light-Up 14th May
We are aiming to go further in lighting up landmarks and monuments purple for Awareness Day this year. We have a sample letter and press release to back it up… read more
Reading Conference Success - Next up East Midlands
After an amazing weekend in Reading, we are good to go with the next one, which will be in the East Midlands area on 29th October 2022… read more
Participation Opportunity: Social Difficulties in Children with CdLS
We are looking for children with Cornelia de Lange Syndrome aged 4-17 years to complete some fun activities that will help us find out more about the social difficulties that some children with CdLS experience… read more