The next UK conference will take place on Saturday 2nd November at Holiday Inn Gloucester-Cheltenham where families will have a chance to have consultations with doctors and experts and also listen to talks by these Professionals. There is no charge for conference but rooms are £50 per night B&B.
The programme (subject to late changes) will run as follows:
Saturday 2nd November
9.30 am - Jim May (Chairman of the CdLS Foundation UK and Ireland) - "Welcome and Introduction to the conference"
9.45 - Tracy Elliot (Cerebra) - "Cerebra: Our Research and Parent Support Services"
10.30 - Coffee
10.45 - Peter Hammond (Molecular Medicine Unit UCL Institute of Child Health ) - "Linking face shape and genotype in CdLS"
11.45 - David Fitzpatrick (MRC Human Genetics Unit, University of Edinburgh, Western General Hospital) - "An overview of the diagnostic features and medical complications in CdLS"
13.45 - Chris Oliver (Cerebra Centre for Neurodevelopmental Disorders, University of Birmingham) - "An overview of behaviour in CdLS"
14.30 - Sara Peaford, Kate Fitzherbert & Mary Shehan (Speech and Language Therapists, Treetops & Beacon Hill Schools) - "A look at the communication issues affecting people with CdLS"
15.15 - Break
15.30 - James Robinson (Policy Officer at Mencap) - "Current changes to the welfare system and education"
16.15 - Peter Gillet (Royal Hospital for Sick Children, Edinburgh) - "Common GI problems in CdLS"
There will be Q&A sessions at the end of each presentation.
Please contact Jacquie at the office on 01375 376439 to make a booking or register for the Conference.