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Important Research from Cerebra

Through extensive research at Cerebra we have identified that a delay in getting a diagnosis of your child’s condition can be a problem and that these delays can impact on the well-being of the child and/or his or her family.  We’d like to find out more about the experiences of families in gaining a diagnosis for their child or children and we would be grateful if you could complete a short survey for us that will only take between 2-5 minutes to complete. The survey is open to parents and carers of children with a neurological condition who either have or a waiting for a diagnosis for their child and where the diagnosis is based in the UK. If you ‘fit the bill’ the please click on the following link and take part in this important survey:


Your help in this piece of research will prove invaluable and will form the basis of further work that is planned with our Legal Entitlements Research Project at Cardiff Law School and as a presentation at a series of seminars in Birmingham and Cardiff run by Professor Luke Clements.

If you have any issues in completing the survey then please do not hesitate to contact Beverley Hitchcock at BeverleyH@cerebra.org.uk  Also if you know of any other people that would be interested in doing the survey, then please feel free to share the above link.

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